Saturday, August 29, 2015

dəˈpre,SH(ə)n & endōˌmētrēˈō,sis

In a recent post called [moh-men-tuh m] I shared about my current experience with depression, and I felt like expanding on that topic tonight. Over the past
This is me at the beach a few months ago; I was
quite pensive at this moment while experiencing
the beginning of the current relapse

two days I've been experiencing a very severe pain flare which has coincidentally (please read that with a tad bit of sarcasm lol) increased the depression I've been feeling. And since both endometriosis and depression seem to still be somewhat taboo topics to discuss, I've decided to open my big mouth to share about my experience.

At present my physical pain is easily at an 8 out of 10, and that is while on all of my pain medications, slathered in essential oils, luckily I have been blessed with countless kitty cuddles, some self-Reiki, heating pad and using my crystals.  I would say that my depression today is ranking at a similar level of severity. I think that both the endometriosis and depression feed off of and impact each other- the more pain I am in physically, the less good I feel emotionally. This seems so logical, right?! But at the same time as logical it seems, is as crappy as it seems to me. As if 'just' one of these issues were not enough then having both is definitely too much.

I thought I should start with a basic definition and description of depression for tonight's blog and have found this information on the site of NIMH (National Instute of Mental Health):

What Is Depression?

Everyone occasionally feels blue or sad. But these feelings are usually short-lived and pass within a couple of days. When you have depression, it interferes with daily life and causes pain for both you and those who care about you. Depression is a common but serious illness.
Many people with a depressive illness never seek treatment. But the majority, even those with the most severe depression, can get better with treatment. Medications, psychotherapies, and other methods can effectively treat people with depression.
There are several forms of depressive disorders.
Major depression,—severe symptoms that interfere with your ability to work, sleep, study, eat, and enjoy life. An episode can occur only once in a person’s lifetime, but more often, a person has several episodes.
Persistent depressive disorder—depressed mood that lasts for at least 2 years. A person diagnosed with persistent depressive disorder may have episodes of major depression along with periods of less severe symptoms, but symptoms must last for 2 years.
Some forms of depression are slightly different, or they may develop under unique circumstances. They include:
  • Psychotic depression, which occurs when a person has severe depression plus some form of psychosis, such as having disturbing false beliefs or a break with reality (delusions), or hearing or seeing upsetting things that others cannot hear or see (hallucinations).
  • Postpartum depression, which is much more serious than the "baby blues" that many women experience after giving birth, when hormonal and physical changes and the new responsibility of caring for a newborn can be overwhelming. It is estimated that 10 to 15 percent of women experience postpartum depression after giving birth.
  • Seasonal affective disorder (SAD), which is characterized by the onset of depression during the winter months, when there is less natural sunlight. The depression generally lifts during spring and summer. SAD may be effectively treated with light therapy, but nearly half of those with SAD do not get better with light therapy alone. Antidepressant medication and psychotherapy can reduce SAD symptoms, either alone or in combination with light therapy.
Bipolar disorder, also called manic-depressive illness, is not as common as major depression or persistent depressive disorder. Bipolar disorder is characterized by cycling mood changes—from extreme highs (e.g., mania) to extreme lows (e.g., depression).
From WebMD I've taken the symptoms of depression:
  • Difficulty concentrating, remembering details, and making decisions
  • Fatigue and decreased energy
  • Feelings of guilt, worthlessness, and/or helplessness
  • Feelings of hopelessness and/or pessimism
  • Insomnia, early-morning wakefulness, or excessive sleeping
  • Irritability, restlessness
  • Loss of interest in activities or hobbies once pleasurable
  • Overeating or appetite loss
  • Persistent aches or pains, headaches, cramps, or digestive problems that do not ease even with treatment
  • Persistent sad, anxious, or "empty" feelings
  • Thoughts of suicide, suicide attempts
 Unfortunately I would argue that each of these symptoms are also commonplace among the women who have endometriosis; I know I can say so for myself. I've also taken the symptoms of endometriosis from WebMD (while this isn't the most descriptive or inclusive list of endo symptoms it does what I need, which is just to make a point):

Some women with endometriosis don't have symptoms. Other women have symptoms that range from mild to severe. Symptoms may include:
  • Pain, which can be:
    • Pelvic pain.
    • Severe menstrual cramps.
    • Low backache 1 or 2 days before the start of the menstrual period (or earlier).
    • Pain during sexual intercourse.
    • Rectal pain.
    • Pain during bowel movements.
  • Infertility may be the only sign that you have endometriosis. Between 20% and 40% of women who are infertile have endometriosis.
  • Abnormal bleeding. This can include:
    • Blood in the urine or stool.
    • Some vaginal bleeding before the start of the menstrual period.
Symptoms are often most severe just before and during your menstrual period. They get better as your period is ending. Some women, especially teens, have pain all the time.

When seeing each of the above endometriosis symptoms it is no wonder that women with endo could, and likely do experience bouts of depression. Endo can impact, if not completely invade and take over almost every aspect of our lives... Actually I'm struggling to think of an aspect of my life that has not been impacted by this disease and I'm truly struggling to do so. When I saw a doctor a few months ago (a substitute for my PCP since she was on maternity leave) for my pre-op appointment and when we went over my medication list (which unfortunately is never short anymore) he was shocked to see I was not on any type of depression medication. At first I was surprised at his reaction, but the more I think about it, especially now, I completely understand and it totally makes sense. How could someone be in chronic and constant severe, if not excruciating, pain NOT be depressed?! Ever since then I've been wondering the same thing. 

If you've read my prior post you know that I recently was hospitalized due to depression. It is not that I actively want to take action to end my life; it is more of a serious exhaustion, a loss of motivation/momentum and a fear of never-ending of these seriously debilitating symptoms in regards to endometriosis. I am tired of this being my life: my life being spent in bed, on the couch, or worse yet, on the bathroom floor. So it isn't quite accurate to say I'm suicidal necessarily; however, I am seriously tired and tired on another level, my body and soul are tired. I think there's a saying that works to describe how I feel: I'm sick and tired of being sick and tired. That pretty much sums it up in one sentence.

I have a feeling that this is going to be an ongoing topic to explore as I'm unable to experience one without the other, with the major impacts this disease keeps having in my life. This disease has truly impacted all significant areas of my life (professional,  romantic, social, personal) and in major ways (losing jobs and friends, missing out on the romantic part of my life for some time now, being in serious pain everyday for several months). Now I am trying to pick myself back up and get back to living.  It is exhausting but I'm going to continue doing my best to keep on keepin' on. 

Signing off in reluctant and tired, yet somewhat unrelenting, 
yet dwindling, hope, 
Stephanie

Thursday, August 20, 2015

Keep Holding On


At present I'm going through a very severe bout of depression, from several sources of mounting stress, a major factor of course being the nearly extremely excruciating and constant amount of physical pain I am experiencing. Music is something in my life that is a major tool and I love it so. I decided to do a music -focused blog post and share some of my favorite songs, looking at the songs that I feel I need to listen to while feeling this way. I hope this playlist of sorts can help any of you out there in a similar state, or maybe this is something you can stash away should those feelings bubble toward the surface.

**Let me make an announcement about the videos and pictures I will be sharing, NONE OF THEM ARE MINE, they are simply found on youtube and google**



Here is one of my favorite songs, no matter how I'm feeling but lyrics-wise it is perfect for how I'm feeling as of late, the band is called Misterwives.







Shania Twain has a song called Today is Your Day and here is the video with the lyrics. It sure picks me up. I love playing it really loudly in the car and singing  my guts out to it!










One of my all time favorite singers is Florence Welch of Florence and the Machine. So much so that my best friend and I once saw her twice in the same tour. Not only does she have some of the most powerful lungs, interesting and catchy lyrics and tunes, but she is a magical performer. One of her songs, Shake it Out, is really a great song when feeling down. Here is an acoustic version video with the lyrics.



My parents used to listen to Fleetwood Mac in the car when we would be on car trips and I would hate it. Now, however they are one of my favorite bands, lol. They have a song called Don't Stop; I saw them live with my mom and this song performed live is just incredible and life-affirming. This isn't a live version video but it has the lyrics which I find helpful, especially if you don't happen to be familiar with the song.



Mariah Carey has several well known hits; however one less well known song hits me very close to home and expresses things I cannot put words to and you can find a video with lyrics to the song here. 






Sia has a hauntingly beautiful voice and it is a perfect fit for the song Breathe Me. Here is the video with lyrics. I love this song. Everything about is fits how I've been feeling the past several weeks.







Rascal Flatts has a lot of songs that I absolutely LOVE but this is the song I use as a pick me up and it always works. It is called Bless This Broken Road and this video has the lyrics in it as well.





Avril Lavigne is another of my favorites and her song Keep Holding On is a great song to hear when feeling down-- you can tell that just from the title alone. Here is the video with the lyrics.









These are just the songs I can think of off the top of my head. I know there are more so I will likely keep adding to this list. I hope it helps someone out there to feel even just a little bit better!

Sending love and healing wishes to my endo sisters out there and a safe path to happiness to those out there battling depression.

love and namaste,

Stephanie



Monday, August 10, 2015

[moh-men-tuh m]

Momentum.

To me momentum can also be referred to as life's energy,  or the force, the energy that moves us forward in life. Further,  momentum is much needed in order for us to continue on;  for what is life without forward movement. What does life become without momentum? 

As our lives progress momentum slows and eventually stops. That lessening and loss of momentum is inevitable. Chronic pain and disease can produce a similar lessening of momentum effect to that of aging. 

I can only speak to the impact of endometriosis from my personal experience and I can say that endo feeds on our very life source.

It is an incredibly painful disease that effects every part of our lives and can take a lot, if not everything, from the women who suffer with endometriosis.

How does one deal with this at the age of 31?! How and why do you get up day in and day out when you cannot find a reason to exist? What do you do when you feel like your life is nothing?  When you feel as though you'll never get anywhere? When you struggle to remember why you exist,  what your purpose is?  How do you keep going when the only thing that feels constant is severe physical pain,  discomfort and feeling worthless? What is the point?

I've been asking myself the past few days what happens when our momentum is gone in life and it is right now,  3:22am that the answer landed into my breaking heart: we become invisible. We become untethered.

Nighttime is even I feel most alone, the most untethered. The world stops.  At night no one is there to hear my thoughts, except me and that can be a sad and dangerous thing. Focusing on the negative aspects and degrading myself without hope is commonplace. This continues night after night. This leaves the presence of nothing good in this miserable world that I seem to be feeding off like a leech. Giving back nothing to society; rather hurting it, like the parasite that I have become. Once sleep comes, if it does,  flashbacks and terrifying nightmares of the past haunt me, beating whatever light I have remaining inside and all I want to do is finish this incredibly painful cycle by sacrificing myself. This option plays out in my mind, and soul, all night, over and over until I wake (that is IF I've slept).

These thoughts became unbearable and unstoppable last week and I didn't want to die so I went to the hospital and checked myself in.  It was a terrifying experience which I may write about later,  but for now I just wanted to share these feelings.

Though I am terrified to post this blog,  more than any other,  I'm hoping I can reach even just one girl who is suffering and let her knowthat when those dark feelings come there are places to go, people to help.  I am nowhere near healed or maybe even healthy at this time but I am on a path,  not even sure where it leads but I'm still walking. Step after painful step.

Signing off with love and peace for each soul who was in the hospital with me,  each suffering woman out there,  and appreciation for those souls willing to and wanting to help.

Just wanted to include some information for anyone needing assistance or having similar feelings, urges, thoughts,  etc:

No matter what problems you are dealing with, we want to help you find a reason to keep living. By calling 1-800-273-TALK (8255) you’ll be connected to a skilled, trained counselor at a crisis center in your area, anytime 24/7.

If anyone out there reading this needs support or sometime to share with please feel free to email me at acardiganlover@gmail.com
I am not offering any professional support rather a friend and understanding soul who wants to help.

Love and namastéॐ,
Stephanie