Don't Let Me Down Now

Wow, well today marks one week of being on Lupron and in MENOPAUSE. I'm not sure what is causing the kind of day I had today, but I'm going to enjoy it:

~ no nausea
~ a half a hot flash
~ minimal mood swings
~ no sweats
~ only minimal cramps
Most excitingly~ NO BLEEDING!!!!!

I had an incredibly long, busy workday and am exhausted but, still, only in a little bit of pain. Put a heating pad on after a hot bath and am cuddling with my kitty.

Hoping for a continued easing up and lessening of symptoms and for a full night of deep, peaceful sleep.

Thank you for taking the time to read my blog. I'm hoping to spread awareness of this disease and what it means in the lives of everyday women AND for those women suffering with it already to know they/we are not alone in this at all.

PS this image isn't mine, I saw it in an online support group.

Lupron: A Week in Review

WelI my first week on Lupron sure has been an emotional and physical rollercoaster!

Physically since my injection I've experienced the following:

~ night sweats

~ insomnia

~ extreme abdominal bloating

~ hot flashes

~ over sleeping

~ excruciating pelvic cramps

~ utter physical exhaustion

~ mood swings

~ menopause memory loss (like forgetting what I'm saying as I'm saying it)

~ the most random, painful pain in my left shoulder bones-- luckily not constant, it comes inwaves

~ breakouts

~ restlessness

And emotionally, I've been ALL over the place:

~ sadness

~ angry

~ frustrated

~ hopeful

~ scared

~ regret

~ overwhelmed

~ embarrassed

~ grateful

~ alone

~ misunderstood

The below picture is my second night in MENOPAUSE, which was HELL.

And below is the morning 

hike I went on last Sunday, first menopause hike! Saw such beautiful trees and a waterfall!

A very dear client planted me this special plant and brought it to me with a very sweet card that she made on the computer. She said that the plant should grow quite a bit and that it is a girl plant. She said "It is my hope that when the plant is a big girl I hope you're back to being a little girl" (in rereference to my bloating, which I've named Katie). 

So I am incredibly grateful that tomorrow is Friday. I have some fun things planned for this weekend: having lunch with a girlfriend Saturday, then seeing my meditation teacher/ dear friend, then very special friends are taking me out to some type of surprise event, not a clue as to what that will be. Sunday morning I will be going with two girlfriends for a beautiful hike and a special birthday lunch for one of my hiking girlfriends, then we will stop at our family ranch and pick some Satsuma tangerines. 

Hoping for a physically easy weekend so I can actually enjoy some of these things I have planned.

Thank you so very much for taking the time to read this blog, and if YOU are personally suffering, I hope this has brought some relief in knowing you/we are in fact NOT alone in this incredibly, deeply painful and scary place.

Namasté  to you all.

Thought we should end with a pic of my precious baby, Tink, who daily saves my life in more ways than I can say. He is such a magical, healing, sentient cat of LOVE.

 

Lupron baby...

Yesterday at 10:30am had my first Lupron injection in Beveloverly Hills at a beautiful injection center. My dear friend went with me and held my hands during the injection. It hurt nothing like I remember, though it took a significant amount of time for me to understand the directions the nurse was giving me on how to stand during the injection lol.

I was incredibly nervous on our way down and even in the room, the following pic cracks me up, only now that it is over. I also hadn't realized how big Katie really looks. I've only taken pics of her from my own perspective and angle so it was shocking to see this, kind of disconcerting.

I asked my friend to take pics so I would have them for my blog :)

Still not sure about this MENOPAUSE business...

Yea guess we're REALLY doing this...

We be in 

MENOPAUSE, baby... 

The injection wasn't bad at all! Scheduled for injection#2 in April. 

Found out I'm on the three month injections, which is much more convenient for me workwise - 

the last thing I need is to miss

more work!! 

Grateful that I had such a great nurse 

give me my injection,

such a supportive friends to hold my hand and such a beautiful infection suite...only in Beverly Hills does an infection center have such a beautiful balcony!! I went out on it before my injection and took a few deep cleansing breaths... REALLY helped to center before my injection.

Thank you soooooo much for taking the time to read this. Going to cross my fingers that Lupron brings some relief.

And just to end on a positive note, here is my beautiful, healing LOVE cat, Tink.

Twas the Night Before Lupron

Well, after several weeks of nearly indescribable suffering, tomorrow I'm going to to the injection center in Beverly Hills and will be having my first Lupron injection. I have gone back and forth about whether this is what I wanted to do or not. I surprised even myself by coming to this decision, for several reasons this is what I decided. First, I've been absolutely miserable and feel like I MUST do something. Second, I absolutely trust, but not blindly, my doctor- he is a genuine, knowledgeable medical professional who actually WANTS me to feel better. Third, the surgery that has been described to me is a little on the hardcore side of things and would really rather have these injections be successful than go through another surgery and recovery. Fourth, this return of endo is truly and deeply impacting my work, and that is just unbearable.

As I prepare for my appointment, I'm feeling a wide array of emotions: hope, fear, nerves, unsure, worry, sense of desperation, shame, frustration, anger, sadness, shock. I'm incredibly hopeful that these injections both improve my current condition and don't overwhelm me with unpleasant side effects. I'm afraid that the exact opposite will happen. I'm nervous about the injections themselves, I believe they were painful and burned. I'm unsure of the outcome of these injections and I'm unsure of how I can handle (physically and emotionally) an unsuccessful round of this therapy. I'm worried about how this condition will effect my life and quality of it as it continues to attack my body. With the growing symptoms and increasing nausea, pain and bleeding, I NEED this to work-- I just turned 30 this past summer and I've already had to undergo a total hysterectomy due to endometriosis. I desperately WANT/NEED these injections to help. I feel such shame with this return, as if it is some type of punishment. (Part of the reason I'm blogging is to deal with the misplaced shame I feel). I am so frustrated with every aspect of this painful disease, further frustrated with the lack of public knowledge about this disease and the cultural insensitivity to something that so seriously affects so many women-- women who should be able to be living the prime of their lives. I'm flat out angry that I have to deal with this AGAIN!!! I don't think it's fair, yes I know, life isn't fair...doesn't change my feelings though. I am sad for myself having to deal with this, and even more sad to know that millions of other beautiful women are suffering just as I am. Interestingly after several weeks of suffering very obvious and troublesome symptoms I'm still somewhat in shock that this has even returned. After having a total hysterectomy, I let myself, no matter how naively, believe it was impossible to return.

The image below isn't mine, I didn't design it, I don't intend to take credit for it or for the design, concept, etc, however I saw it on Google images and find it is so incredibly perfect to describe my sentiments toward endometriosis:

My New Year's resolution and mantra from Winter Solstice is BRAVE HEALING. So I'm going to try to walk through the emotions I listed above and put all my energy and intention into my injection tomorrow being the beginning of my BRAVE HEALING.

 Sending big, healing hugs and loves to all of my endosisters out there. Remember, as much as this disease sucks, and boy does it, we do not walk alone, especially when we share our experiences. 

Thank you for taking the time to read my blog. If you have endo yourself I hope you found some comfort here. If you do not have endo, I hope you learned a little more about the ways that endo affects women's lives.

Namasté and loves to all.

New Year's Day Project

Well with the return of my endometriosis I've experienced a surreal amount of enormous, uncomfortable and pregnant-looking bloating. With the fact that my case of endometriosis has made me unable to carry a baby, it is quite painful to look pregnant. What makes it even more emotional is when I'm out and about people will share congratulations, ask when I'm due, or even reach out and touch my belly. True, they are just expressing LOVE and genuine positivity; however, also true, it is incredibly painful to be put in such an uncomfortable position so frequently with strangers. I've expressed a wide gamet of responses, ranging from sarcasm, tears and inappropriate anger. The people offering me their sentiments do not deserve my sarcasm, but I also believe I don't deserve to have whatever healing I may have achieved to be ripped off and to feel so vulnerable by an encounter with a stranger. 

I've had several people give me advice on how to better handle this situation, especially since it will obviously continue until my problem is dealt with. One friend advised me to simply say "thank you"... I cannot do that because it simply isn't true, I am not thankful that yet again I'm reminded by a stranger that I look pregnant and all of the emotions that sets off within myself. Another friend suggested I simply explain that I'm not pregnant and I have endometriosis. That response is not only more true but adds a platform for education, but still leaves me with the emotional experience I go through when people ask.

This morning, fittingly, New Year's Day, I decided I would deal with this in my own style and way. Initially I tried to sew "no, I'm not pregnant, I have endometriosis"... however I'm not sure how I became so delusional as to think I could sew all of that- guess it could be the pain pills lol. Anyhow I did sew "no" and then stopped, realizing I have no sewing skills... I ended up getting a cute v-neck shirt and fabric paint markers. Much easier!! I have now finished one shirt that explains that I'm not pregnant, I have endometriosis. I'm geekishly excited about this and most definitely plan on making a few and will be wearing this first one tomorrow. Truly hoping this will put a stop to these incredibly uncomfortable, emotional encounters.

Happy NYE

Just wanted to wish a happy, and more importantly pain-free and healthy 2014 to all of my endosisters and dear friends.

We've gotta keep faith. Faith that eventually there will be an effective treatment. Faith that our doctors truly want to help us feel better. Faith that education, support and knowledge will replace the widespread ignorance regarding endometriosis. Faith that people will begin to understand what we go through day in and day out and withhold their painful, and usually incorrect, judgments. Faith that WE WILL GET BETTER. . . Now I'm writing this at the end of my third day in a row of being in excruciating pain, so I'm fighting to hold on to mine.

I'm planning on writing a longer post tomorrow...as for tonight, I'm completely medicated, covered by my kitty, my Lulu savasana sweater, tons of blankets, ugg boots and heating pads.

Let's all hold onto or Faith as we step into 2014.

Love, love.

Katie: a collective

Well it's been a very long week and didn't have much time to write. My endo is causing me such incredible bloating, nausea, pain, blood loss, exhaustion and sleeplessness. 

For some reason I'm being pulled to share some of my bloat pictures. Do any other endosisters out there experience this?? 

It's becoming more and more difficult to get through the day(s) without crying. At times the 

emotions that accompany all I'm going through, and have been through physically, is super overwhelming. 

It is even more difficult for people to understand what this is like. I'm blessed to be surrounded by a group of supportive people in my life, which helps more than words can say, but don't have people that truly get it from .

their own experience.

I've received all kinds of completely insensitive comments like:

- You just have a low pain tolerance

-You use it as an excuse to get out of doing things

- It can't be thaaaaaat bad

- You just need to toughen up

These comments just show how insensitive and ignorant our society is in a disease.that impacts one out of ten women in America

Next week I'm scheduled to begin hormone therapy- called Lupron. This treatment is super controversial. Something within me right now is telling me it WILL help. I am going to give it a try.

Every morning I take a picture of Katie, my bloat-- yes, I named her. The bloating is one of the symptoms that none of my medications do anything to help. I've had to buy maternity leggings because sometimes I cannot even fit into my clothes.  I've lost 12lbs since I went and saw my specialist like two weeks ago... but the bloat is still there.

Well, thank you all for taking the time to read this... if you have comments or questions or want to share your story, please do not hesitate to do so.

 

Wishing you all a steady path of BRAVE HEALING!!